Virsaviya is just like any other seven-year-old-girl – she likes dancing, drawing and ponies.
But as this incredible footage shows, the brave girl was born with an extraordinary condition which means her heart is outside her chest.
The little girl suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell – a condition that occurs in less than 1 in a million births.
She said: “This is my heart. I’m the only one that has this.”
Virsaviya’s heart can be visibly seen beating underneath her rib cage with only a thin layer of skin to protect it.
She adds: “When I’m getting dressed, I put soft clothes on to not hurt my heart.
“I walk around, I jump, I fly, I run, I’m not supposed to run but I love running.”
When Virsaviya was born in Russia, doctors warned mum Dari Borun to prepare for the worst.
She said: “Doctors told me Virsaviya had a really rare condition. But they said she won’t survive. When I saw the first time how her heart was beating, of course to me it was something special.
“It meant that Virsaviya’s alive and she can breathe and she can live.”
Dari moved her from Russia to the US in the hope she could have surgery but she was told that Virsaviya wasn’t strong enough because of problems with her blood pressure.
“I like to draw Jesus, ponies and angels,” said Virsaviya.
“I don’t go to the school and I don’t go to the ballet but I want to do it at home.
“My heart is right here.
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